Marfan Foundation

Port Washington, NY 11050

22 Manhasset Avenue
Port Washington, NY 11050

(800) 8-MARFAN (516) 883.8712) Ext. 126
Visit
About

The Marfan Foundation is a non-profit organization whose mission is to save lives and improve the quality of life of individuals with genetic aortic and vascular conditions. These include Marfan syndrome, Loeys-Dietz syndrome, and Vascular Ehlers-Danlos syndrome (VEDS). 

Helpful Tips

If you have medical questions, complete the Contact Form Medical

For non-medical questions, complete the Contact Form Non-Medical

Complete the Find a Doctor form is you are looking for a doctor who treats Marfan syndrome and related conditions. 

ACHA on Capitol Hill

Our volunteers are in DC and online to request full funding for CHD programs authorized under the Congenital Heart Futures Reauthorization Act of 2024. Act now to support our efforts by emailing ACHA’s prewritten letters to your elected officials!

BESbswy