Patient Resource Directory

2HEARTS is a nonprofit that provides support and education for children, youth and families affected by Congenital Heart Disease.

2055 S. Oneida Street Suite 398, Denver, CO, 80224

The 988 Suicide & Crisis Lifeline provides free and confidential emotional support to people in suicidal crisis or emotional distress 24 hours a day, 7 days a week, across the United States and its territories.

Accessia Health is a nonprofit that provides financial assistance to patients living with rare or chronic conditions and whose household income qualifies.

P.O. Box 5930, Midlothian, VA, 23112

The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule, a federal law, gives you rights over your health information and sets rules and limits on who can look at and receive your health information.

U.S. Department of Health & Human Services , 200 Independence Avenue, S.W., Washington, DC, 20201

This guide is for patients who want to get their health records and for people who care for a patient, like a minor child or an elderly parent.

Office of the National Coordinator for Health Information Technology (ONC), U.S. Department of Health and Human Services, 330 C St SW, Floor 7, Washington, DC, 20201

It can be hard for students with medical conditions to cope with the demands of managing their illness while also handling the challenges of getting a degree.

The ACHA ACHD Online Program Directory is a listing of self-identified U.S. and Canadian ACHD clinics that have participated in the ACHA/ISACHD ACHD Clinic Survey Project.

280 North Providence Road, Suite 6, Media, PA, 19063

The ACHA Travel Directory is intended to help patients find emergency care when traveling. It includes ACHD programs in the U.S. and Canada, in addition to international programs.

280 North Providence Road, Suite 6, Media, PA, 19063

The Administration on Aging (AOA) is the principal agency of the U.S Department of Health and Human Services designated to carry out the provisions of the Older Americans Act of 1965 (OAA), as amended (42 U.S.C.A. § 3001 et seq.).

330 C St SW, Washington, DC, 20201

Founded in 1998, the Adult Congenital Heart Association (ACHA) is a national not-for-profit organization dedicated to supporting individuals and families living with congenital heart disease and advancing the care and treatment available to this community.

280 North Providence Road, Suite 6, Media, PA, 19063

Obtenga información actualizada sobre las cardiopatías congénitas y sobre importantes problemas de salud relacionados con dichas enfermedades.

280 North Providence Road, Suite 6, Media, PA, 19063

The Patient Protection and Affordable Care Act, referred to as the Affordable Care Act or “ACA” for short, is the comprehensive health care reform law enacted in March 2010.

Health Insurance Marketplace, Attn: Coverage Processing, 465 Industrial Blvd, London, KY, 40750

You could be the difference between life and death for someone experiencing a cardiac event.

7272 Greenville Ave., Dallas, TX, 75231

The Air Care Alliance is a nonprofit nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service.

2060 State Highway 595, Lindrith, NM, 87029-9707

Al-Anon (which includes Alateen for younger members) is a mutual support program for people whose lives have been affected by someone else´s drinking.

1600 Corporate Landing Parkway, Virginia Beach, VA, 23454

Alcoholics Anonymous® is a fellowship of people who come together to solve their drinking problem.

475 Riverside Drive at West 120th Street; 11th and 8th floors, New York, NY, 10115

The American Academy of Pediatrics (AAP) is the largest professional association of pediatricians in the US.

345 Park Boulevard, Itasca, IL, 60143

American Adoptions is a fully licensed domestic adoption agency that works across the nation.

7500 W. 110th St, Suite 500, Overland Park, KS, 66210

The American College of Cardiology’s (ACC’s) mission is to transform cardiovascular care and improve heart health for all.

2400 N. St. NW, Washington , DC, 20037

Established in 1987, AFSP is a voluntary health organization that gives those affected by suicide a nationwide community empowered by research, education and advocacy to take action against this leading cause of death.

199 Water Street , 11th floor, New York, NY, 10038

Established in 1987, AFSP is a voluntary health organization that gives those affected by suicide a nationwide community empowered by research, education and advocacy to take action against this leading cause of death.

199 Water Street 11th floor, New York, NY, 10038

The American Heart Association (AHA) has been fighting heart disease and stroke for nearly 100 years and helping families and communities thrive.

7272 Greenville Ave., Dallas, TX, 75231

Americans Against Language Barriers (AALB) is a non-profit organization dedicated to improving the care of patients with limited English proficiency by training medical interpreters, providing language services, and advocating for policy reform.

1 East Erie Street, Suite 525-4588, Chicago, IL, 60611

The American with Disabilities Act protects disabled persons from discrimination. It offers information to people with disabilities, as well as state/local government and businesses.

950 Pennsylvania Avenue, NW, Washington, DC, 20530

Aortic Hope is a 501c3 charity that serves a community of patients, survivors, and caregivers living with an aortic disease.

PO Box 17, Abingdon , MD, 21009

AZ&ME provides medications at no cost to eligible patients who have been prescribed AstraZeneca medications and cannot afford them.

The Berger and Green Heart Disease Scholarship is open to undergraduate and graduate students living with heart disease in the United States.

800 Waterfront Drive, Pittsburgh, PA, 15222

Blink Health is a digital pharmacy that provides the lowest prescription price, with free home delivery for select medications.

1407 Broadway, Suite 1910, New York, NY , 10018

Blue Lips Foundation provides grant assistance to patients with pulmonary hypertension (PH) who are facing financial needs challenges related to their PH care.

3201 163rd St, Urbandale, IA, 50323

Welcome to ACHA’s listing of books about different aspects of life with adult congenital heart disease!

Brave Health believes that everyone should have access to high-quality mental health care.

1951 NW 7th Ave, Suite 300, MIami, FL, 33136

Since 1996, Camp Boggy Creek has made it possible for children with congenital heart defects to enjoy a camp experience in a safe, medically-sound environment.

30500 Brantley Branch Rd, Eustis, FL, 32736

Camp Bon Coeur (Camp Good Heart!) opened in 1985 to give children with heart defects a place where they can “just be a kid.”

300 Ridge Rd, Ste K, Lafayette, LA, 70506

Camp Braveheart is a week-long summer camp for kids with heart defects or transplant ages 7 to 17.

1391 Keencheefoonee Rd, Retledge, GA, 30663

Camp Braveheart is a life-changing teen camp in partnership with Omaha Children's Hospital & Medical Center and YMCA's Camp Kitaki in Louisville, NE.

PO Box 340, Boys Town, NE, 68010

“CAMP CARRIE | A Family Retreat for Heart Warriors,” was founded by TJ and Ty’lsha Carrie as a retreat for families dealing with the challenges that come when a child has heart disease.

1122 Kenilworth Drive , Suite 201, Townson, MD, 21204

Camp del Corazon Inc. is a 501(c)(3) non-profit corporation, providing a free of charge summer camp for children with heart disease.

11615 Hesby St, Hollywood, CA, 91601

Camp For All transforms the world for children and adults with challenging illnesses, disabilities, or special needs.

3701 Kirby Drive, Suite 570, Houston, TX, 77098

Camp Heartbeat offers children and teens with heart conditions, ages 7-18, six days and five nights of summer fun, education, and social connections in a safe and supervised environment.

1 Inventa Place, 4th Floor, Silver Springs, MD, 20910

Camp Joyful Hearts is a residential summer camp for kids and teens with heart disease.

10117 Old 3C Highway, Clarksville, OH, 45113

Camp Lionheart is a summer camp in Pennsylvania held annually for children 12 to 18 years of age with heart disease.

121 N Nye's Road, Suite D, Harrisburg, PA, 17112

Camp LUCK provides services for families that have children with heart disease.

5655 Cohn Eaker Rd, Cherryville, NC, 28021

Camp Mend-A-Heart is a cost-free, medically supervised camp for children ages 7-17 receiving medical treatment in Nevada who are born with or develop a heart condition.

3131 La Canada St, Ste 110, Las Vegas, NV, 89169

Camp Moss serves campers who have cardiac disease

4925 Greenville Ave, Dallas, TX, 75206

Camp Odayin provides life-changing camp experiences and programming to children with heart disease and their families.

3503 High Point Drive North, Ste 250, Oakdale, MN, 55128

Camp Rhythm provides a residential camping experience for children with congenital or acquired heart defects.

1 Children’s Place, St. Louis, MO, 63110

Camp Taylor is a non-profit medically supervised camp for children with heart disease and their families.

8224 W. Grayson Rd, Modesto, CA, 95358

Cardiac KIds Camp is a fun-filled week at camp with other children just like them. The camp is designed to provide education about heart diagnoses and promote healthy lifestyles.

1458 Pilot Knob Road, Eva, TN, 38333

People who are lesbian, gay, bisexual, and transgender have a variety of health needs.

The Center for Surrogate Parenting (CSP) is a world-renowned agency that has been helping create families through surrogacy since 1980.

15821 Ventura Blvd Suite 625, Encino, CA, 91436

Camp Systole is a camp for children with congenital heart defects in Kansas City.

34030 W 204th St, Lawson, MO, 64062

The National Foster Care & Adoption Directory offers contact information for State child welfare officials, programs, organizations, and services with a focus on foster care, permanency, and adoption. .

330 C Street SW, Washington, DC, 20201

Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD) believes in improving the lives of those affected by Attention Deficit Hyperactivity Disorder (ADHD).

4221 Forbes Blvd, Suite 270, Lanham, MD, 20706

CollegeScholarships.com has helped students pay for college since 1999.

The mission of Congenital Cardiology Today (CCT) is to provide reliable and timely information on Congenital and Structural Heart Disease.

Creative Family Connections is a boutique surrogacy agency composed of strong, passionate, highly educated women who are experts in their field.

2 Wisconsin Circle, Suite 700, Chevy Chase, MD, 20815

Dollar For is a national nonprofit that crushes medical bills by helping patients access charity care.

104 W 9th Street, Suite 205, Vancouver, WA, 98660

Dr. Bill Neches Heart Camp for Kids provides an opportunity for patients of UPMC Children’s Hospital of Pittsburgh with congenital and acquired heart disease to enjoy the beautiful surroundings of Kon-O-Kwee Spencer YMCA.

126 Nagel Road, Formbell, PA, 16123

Dreaming of Three (DO3) is a 501c nonprofit organization that is dedicated to charitable fund raising through their passion of horses and rodeo.

5700 Corporate Drive, Suite 455, Pittsburgh, PA, 15237

Dreams from the Heart Camp provides a structured and supervised recreational outlet for children with complex heart disease.

936 Delaware Ave., Buffalo, NY, 14209

eMedCert provides an online alternative to traditional, hands-on life support and resuscitation training

Empower My Congenital Heart is a digital tool designed to support Congenital heart patients by encouraging lifelong, specialized care, and helping CHD patients understand when, why, and how to access the right care.

Get FARXIGA for as little as $0 per month with the FARXIGA Savings Card.

Fastweb is a free scholarship search platform that connects students to scholarships and financial aid tools.

133 Boston Post Rd, Weston, MA, 02493

Federal Student Aid, a part of the U.S. Department of Education, is the largest provider of student financial aid in the nation.

Finaid is the go-to guide for college financial aid Information on financial aid for college and tips on how to help ease the burden of college expenses.

133 Boston Post Rd, Weston, MA, 02493

Find Help’s mission is to connect all people and the programs that serve them, with dignity and ease.

Hasbro Children’s Hospital’s Follow Your Heart Camp is a free sleepaway camp for children ages 8 to 15 with congenital heart disease, including those who have had cardiac surgery.

1 Hoppin St., Ste 304, Providence, RI, 02903

The Fontan Outcomes Network (FON) is a lifespan learning network made up of a community of patients, families, clinicians, and researchers who together seek to transform outcomes for all people affected by single ventricle heart disease.

Genetic and Rare Diseases Information Center (GARD) supports people living with a rare disease and their families with free access to reliable, easy to understand information in English and Spanish.

PO Box 8126, Gaithersburg, MD, 20898

The mission of the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH) is to improve worldwide life-long outcomes in childhood-onset heart disease through empowering patient and family organizations.

Founded in 2021, the Global Coalition for Fitness and CHD is a group of healthcare providers from across the globe dedicated to impacting overall fitness of body and mind for patients living with congenital heart disease (CHD) and pediatric acquired heart conditions.

Goodbill reviews your itemized hospital bill for errors and opportunities to save money.

Seattle, WA

GoodRx’s mission is to build better ways for people to find the right care at the best price. Their technology gives all Americans the knowledge, choice, and care they need to stay healthy.

2701 Olympic Blvd., West Building Suite 200, Santa Monica, CA, 90404

Got Transition is a national resource center focusing on health care transitioning (HCT).

335 Wisconsin Avenue NW, Suite 440, Washington, DC, 20015

Hayden's Heart is a non-profit 501(c)(3) that has been created to honor Hayden Jeter Dorsett.

The Health Resources and Services Administration (HRSA) provides equitable health care to the nation’s highest-need communities.

5600 Fishers Lane, Rockville, MD, 20857

Healthcare Hospitality Houses (HHH) provide lodging at significantly reduced costs to patients and their caregivers while receiving life-saving medical care away from their home communities.

22640 Hazel Lane, Rapid City, SD, 57702

Healthinsurance.org is an independent health insurance guide offering consumer information on affordable health and medical coverage, including state-by-state listings of options.

5353 Wayzata Boulevard, Suite 300, St. Louis Park, MN, 55416

The HealthWell Foundation is dedicated to improving access to care for America’s underinsured.

20440 Century Blvd. Suite 250, Germantown, MD, 20874

Heart and Mind Counseling work with couples, families, and individuals who are experiencing depression, anxiety, grief, congenital disease, chronic disease, and health issues, including organ transplant, to help you overcome your hurdles so you can start enjoying moments in life again.  They understand the struggle when life feels like it is spiraling.

135 N. Old Woodward Ave., Suite 200, Bloomfield, MI, 48009

The mission of the Heart Failure Society of America is to provide a platform to improve and expand heart failure care through collaboration, education, innovation, research, and advocacy.

500 N Washington St. , #10009, Rockville, MD, 20849

Heart University offers a virtual library and online classroom

The Heart Warrior Achievement Scholarship, Inc, is a non-profit 501(c)(3), organization that provides scholarships to CHD warriors who are pursuing a higher education.

7 Burrows Street, Groton, CT, 06340

Heartpedia is a 3D interactive mobile app that was created by Cincinnati Children’s Hospital to educate families about the heart and certain heart defects.

Cincinnati Children’s Hospital, 3333 Burnet Avenue, Cincinnati , OH, 45229-3026

Heart Snug is the world's 1st adjustable & disposable medical chest coverage bra created by women and for women.

The Todd and Karen Wanek Family Program for HLHS at Mayo Clinic created the HLHS Consortium and HeartWorks to improve access to clinical trials and allow researchers to pool scientific knowledge with top cardiovascular programs around the country.

3033 41st Street NW , Suite 305, Rochester, MN, 55901

The primary purpose of the Helping Hearts Foundation is to raise awareness, unite and empower families dealing with Congenial Heart Defects (CHD’s).

2109 Emmorton Park Rd; Suite 119, Abingdon, MD, 21040

Helpusadopt.org is a national 501(c)(3) financial grant program that helps couples/individuals (regardless of ethnicity, gender, marital status, race, religion, or sexual orientation) with the cost of their adoptions by awarding grants up to $30,000.

PO BOX 787, New York, NY, 10150

Founded in 1996, the Hypertrophic Cardiomyopathy Association (HCMA) works to improve the lives of those living with hypertrophic cardiomyopathy (HCM) to prevent untimely deaths and advance global understanding.

66 Ford Road, Suite 213B, Denville, NJ, 07834

The I Heart Change website is made for young people with congenital heart disease (CHD).

Intermountain Healing Hearts (IHH) is a 501c(3) non-profit organization for families of children and adults with congenital heart defects (CHD) and childhood onset heart disease.

PO Box 581306, Salt Lake City, UT, 84158

The International Society for Adult Congenital Heart Disease (ISACHD) is a nonprofit organization to promote, maintain and pursue excellence in the care of adults with congenital heart disease worldwide.

3739 National Drive, Suite 202, Raleigh, NC, 27612

Patient assistance from Janssen is available if you have commercial, employer-sponsored, or government coverage that does not fully meet your needs and if you are not supported by other Janssen Access & Affordability options.

PO Box 200, Titusville, NJ, 08560

With a JARDIANCE Savings Card, eligible patients pay as little as $10* a month for a 1- to 3-month prescription.

900 Ridgebury Rd, P.O. Box 368, Ridgefield, CT, 06877

For more than 20 years, the John Ritter Foundation for Aortic Health has remained committed to its goal of raising awareness and changing outcomes.

11901 Santa Monica Blvd , Suite #410, Los Angeles, CA, 90025

Johnson & Johnson Patient Assistance Foundation, Inc. (JJPAF) is an independent, non-profit organization that is committed to helping eligible patients get certain free prescription medications.

P.O. Box 0367, Chesterfield, MO, 63006

Johnson & Johnson Patient Assistance Foundation, Inc. (JJPAF) Hospital Access Patient Assistance Program (HAPAP) helps eligible hospitals receive free medications to give to eligible outpatients directly.

PO Box 0367, Chesterfield, MO, 63006

The KardiaMobile Heart Monitor is the world’s only FDA-cleared single-lead personal EKG that fits in your wallet.

Mountain View, CA

Kroger Specialty Pharmacy is a nationwide clinical pharmacy servicing patients with chronic illnesses requiring complex care in all 50 states and Puerto Rico.

3200 Lake Emma Road, Suite 1000, Lake Mary, FL, 32746

LawHelp is a program of Pro Bono Net, a national nonprofit dedicated to bringing the power of the law to all.

The Learning Disabilities Association of America (LDA) is the largest nonprofit volunteer organization advocating for individuals with learning disabilities.

4068 Mount Royal Boulevard, Suite 224B, Allison Park, PA, 15101

Levi's Legacy is a 501(c)3 organization founded by a heart family after losing their son in 2021.

Madden Open Hearts Camp is a summer retreat where children who have an open-heart surgery can come together and connect as they enjoy recreational, athletic, artistic, and cultural activities.

250 Monument Valley Road, Great Barrington, MA, 01230

This scholarship was created in honor of Maggie Baumann. Maggie was a congenital heart disease (CHD) warrior with a passion for healthcare education and patient advocacy.

PO Box 8141, Cincinnati, OH, 45208

The Marfan Foundation is a non-profit organization whose mission is to save lives and improve the quality of life of individuals with genetic aortic and vascular conditions.

22 Manhasset Avenue, Port Washington, NY, 11050

Mark Cuban CostPlus Drug Company offers safe, affordable medicines at the lowest possible price.

320 S Walton St, Dallas, TX, 75226

Medicaid provides health coverage to millions of Americans, including eligible low-income adults, children, pregnant women, elderly adults and people with disabilities.

Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Baltimore, MD, 21244

Medicare is our country's health insurance program for people age 65 or older. You may also qualify if you have permanent kidney failure or receive Disability benefits.

Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Baltimore, MD, 21244

Mended Hearts is a peer-support program for patients who have cardiovascular disease, their caregivers, and their families.

1579 US Highway 19, Leesburg, GA, 31763

Mended Little Hearts (MLH) is a non-profit support group for families with children born with a congenital heart defect.

1579 US Highway 19, Leesburg, GA, 31763

Mercy Medical Angels is a nonprofit organization that provides assistance for transportation on the ground and in the air to patients with financial needs.

101 West Main Street, Suite 1000, Norfolk, VA, 23510

Merry Heart Children’s Camp provides a safe summer camp experience for about 54 youth with heart conditions from Oregon, Washington, and Idaho.

PO Box 80413, Portland, OR, 97280

Mettle Health is comprised of a team of healthcare providers working together to fill the gaps of our healthcare system by discussing the impacts of new or ongoing diagnoses, evolving roles/identities, grief/loss, living with chronic disease, care provider coping strategies, and/or navigating end of life.

PO Box 2081, 751 E Blithedale Ave, Mill Valley, CA, 94941

My Good Days is a national non-profit organization that provides patient assistance and financial resources for life-saving and life-extending treatments to people in need.

2611 Internet Blvd., Suite 105, Frisco, TX, 75034

NAHC is the leading authority in transforming care in the home.

NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.

4301 Wilson Blvd. Suite 300, Arlington, VA, 22203

The National Association for Down Syndrome (NADS) supports all persons with Down syndrome in achieving their full potential and their families.

1460 Renaissance Drive, Suite #102, Park Ridge, IL, 60068

The National Organization for Rare Disorders (NORD) is the leading independent patient advocacy organization representing all individuals and families affected by rare diseases in the United States.

1900 Crown Colony Drive, Suite 310, Quincy, MA, 02169

The National Association of Insurance Commissioners (NAIC) provides expertise, data, and analysis for insurance commissioners to effectively regulate the industry and protect consumers.

1100 Walnut Street, Suite 1500, Kansas City, MO, 64106

NCOA was the first national voice for older adults.

251 18th Street South, Suite 500, Arlington, VA, 22202

The National Council of State Housing Agencies (NCSHA) is a nonprofit, nonpartisan organization created to advance the efforts of the nation’s state Housing Finance Agencies (HFAs) and their partners to provide affordable housing to those who need it.

444 North Capitol Street NW, Suite 438, Washington, DC, 20001

Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

1155 15th Street NW, Suite 540, Washington, DC, 20005

The National Family Caregivers Association’s mission is to educate, support, and empower those who care for loved ones with a chronic illness or disability.

1150 Connecticut Ave, NW Suite 501, Washington , DC, 20036

The mission of the NHC is to provide a united voice for the 160 million people living with chronic diseases and disabilities and their family caregivers.

1730 M Street NW, Suite 650, Washington , DC, 20036-4561

The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood disorders and enhance the health of all individuals so that they can live longer and more fulfilling lives.

31 Center Drive, Building 30, Bethesda, MD, 20892

Long-term care involves a variety of services designed to meet a person’s health or personal care needs when they can no longer perform everyday activities on their own.

PO Box 8057, Gaithersburg, MD, 20898

The National Patient Advocate Foundation (NPAF) is dedicated to amplifying the voices of patients and advocating for better access to affordable, equitable, quality care.

1100 H St NW, Suite 710, Washington, DC, 20005

NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.

50 Whittemore St., Glouster, MA, 01930

Nick & Kelly Children’s Heart Camp provides families peace of mind while offering kids the full camping experience – from sleeping in a cabin, nature walks, water sports and recreation to arts and crafts.

1321 E. Bayview Dr, Tempe, AZ, 85283

The Noonan Syndrome Foundation (NSF) is the leading 501(c)(3) non-profit, charitable Noonan Syndrome (NS) organization.

605 SW US HWY 40 Ste 277, Blue Springs, MO, 64014

North Star Reach is Michigan’s only barrier-free, fully accessible medical camp serving children with significant health challenges and their families, all at no charge to them.

1200 University Camp Drive, Pinckney, MI, 48169

The mission of the Ollie Hinkle Heart Foundation is to address the unmet needs of heart families while transforming the future of pediatric heart care.

144 W. Lockwood Ave, Suite201, Webster Groves, MO, 63119

Ollie Hinkle Heart Foundation prioritizes supporting the mental wellness of heart warriors, their families, and their caregivers.

144 W. Lockwood Ave, Suite 201, Webster Groves, MO, 63119

OpenMD Medical Terminology Dictionary is a medical reference service that makes high-quality medical information easily accessible to everyone.

New York, NY

Parent Heart Watch (PHW) is the only national voice solely dedicated to protecting youth from sudden cardiac arrest (SCA) and preventable sudden cardiac death.

2624 Whitman Drive, Wilmington, DE, 19808

The Patient Access Network (PAN) Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications.

805 15th Street, NW, Suite 500, Washington, DC, 20005

The Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit that provides direct services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor.

421 Butler Farm Road, Hampton , VA, 23666

The Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit that provides direct services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor.

421 Butler Farm Road, Hampton, VA, 23666

The Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit that provides direct services to patients with chronic, life threatening and debilitating diseases to help access care and treatment recommended by their doctor

421 Butler Farm Road, Hampton , VA, 23666

In 2000, PAF established the Scholarship for Survivors program to honor these individuals by offering educational scholarships to students who have suffered (or are suffering) from cancer or a chronic illness.

421 Butler Farm Road, Hampton , VA, 23666

The Patient Advocate Foundation Co-Pay Relief (CPR) provides direct financial assistance with co-payments, co-insurance and deductibles required by the patient’s insurer for medications prescribed to treat and manage their disease.

421 Butler Farm Road, Hampton, VA, 23666

Planned Parenthood is a trusted health care provider, an informed educator, a passionate advocate, and a global partner helping similar organizations around the world.

PO Box 97166, Washington, DC, 20090-7166

Project ADAM is a nationwide initiative that has saved the lives of more than 200 children, adolescents and adults who went into sudden cardiac arrest.

The Pulmonary Hypertension Association (PHA) is a non-profit organization whose programs include support groups, early diagnosis and awareness programs, specialty care resources and research.

8401 Colesville Road, Suite 200, Silver Spring, MD, 20910

Quest Diagnostics is committed to providing clinical laboratory services regardless of a person’s ability to pay.

This is a social news website and forum for adults with Congenital Heart Defects.

Rehabs.org provides patients and their families with reliable, non-biased information regarding every treatment center in the country.

SingleCare believes that feeling better shouldn't be painful. Their super-smart system and close relationships with the big pharmacies mean they can set lower prices on tens of thousands of drugs.

99 High St Fl 28, Boston, MA, 02110

Sisters by Heart (SBH) is a U.S. based non-profit (501c3) whose mission is to provide support, education and empowerment to individuals and families affected by single ventricle heart disease (SVHD) from the time of initial diagnosis throughout their journey.

PO Box 599, Valley Center, CA, 92082

The Compassionate Allowances Program allows the Social Security Administration to quickly target the most obviously disabled individuals for allowances based on objective medical information.

Office of Public Inquiries and Communications Support , 1100 West High Rise , 6401 Security Blvd., Baltimore, MD, 21235

Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs help people who meet Social Security’s requirements for disability.

6401 Security Blvd., Baltimore, MD, 21235

The mission of Students with Heart Foundation is to provide financial assistance to both undergraduate and graduate students who have heart disease and deformities.

P.O. Box 820222, Pembroke Pines, FL , 33082

The Substance Abuse and Mental Health Services Administration (SAMHSA) is the agency within the U.S. Department of Health and Human Services that leads public health efforts to advance the behavioral health of the nation.

5600 Fishers Lane, Rockville, MD, 20857

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death.

4527 South 2300 East, Suite 104, Salt Lake City, UT, 84117

Surrogate Mothers Online provides information and support to individuals who are interested in pursuing surrogacy or egg/sperm donor arrangement.

The Synthroid Delivers Program is a patient pharmacy service that partners with you to ensure you always get brand-name Synthroid and resources you can rely on to help you stay on track.

Eagle Pharmacy, PO Box 90937, Lakeland, FL, 33804

Team Phenomenal Hope is a 501 (c)(3) nonprofit who seeks to raise awareness of Pulmonary Hypertension (PH), to fund medical research for improved treatments or a cure, and to implement programs focusing on patient services.

2206 N Main Street #141, Wheaton, IL, 60187

The Assistance Fund (TAF) is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.

4700 Millenia Blvd., Suite 410, Orlando, FL, 32839

The Conversation Project® is a public engagement initiative of the Healthcare Improvement (IHI), a not-for-profit organization that is a leader in health and health care improvement worldwide.

53 State St, 18th Floor, Boston, MA, 02109

The Dave Thomas Foundation for Adoption is a national, nonprofit public charity dedicated to finding forever families for the more than 140,000 children waiting to be adopted from foster care in the United States and Canada.

4900 Tuttle Crossing Blvd, Dublin, OH, 43016

The Healer Within Foundation advances community-based Qigong/Tai Chi and other self-healing, body-mind-spirit practices through collaborations with individuals and organizations, to sponsor trainings, community practice groups and research.

27 West Anapamu Street #430, Santa Barbara, CA, 93101

The Loveland Foundation is committed to showing up for communities of color in unique and powerful ways, with a particular focus on Black women and girls. Loveland Foundation is committed to showing up for communities of color.

320 7th Ave #263, New York, NY, 11215

NOSORH was established in 1995 to assist State Offices of Rural Health (SORH) in their efforts to improve access to, and the quality of, health care for nearly 61 million rural Americans.

44648 Mound Road, #114, Sterling Heights, MI, 48314-1322

The mission of the TJ Carrie Foundation is to provide a social-emotionally supportive community for children and families living with heart conditions, while educating the greater community on heart health.

1122 Kenilworth Drive , Suite 201, Towson, MD, 21204

Triage Health provides free education on the legal and practical issues related to navigating a chronic or serious medical condition.

The Turner Syndrome Society of the United States (TSSUS) is a non-profit whose mission is to advance knowledge, facilitate research, and support all those touched by Turner syndrome.

11250 West Rd, Suite G, Houston, TX, 77065

Many transplant patients cannot afford to pay for the full cost of organ transplant surgery, or even a small insurance deductible amount.

700 N. 4th Street, Richmond, VA, 23219

The U.S. Equal Employment Opportunity Commission (EEOC) is responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person's race, color, religion, sex (including pregnancy and related conditions, gender identity, and sexual

131 M Street, NE, Washington , DC, 20507

Students can begin the search for medical-based financial aid by visiting their local Vocational Rehabilitation Services office.

The WSPCHS promotes the highest quality comprehensive cardiac care to all patients with congenital heart disease, from the fetus to the adult, regardless of the patient’s economic means, with an emphasis on excellence in teaching, research and community service.

The Montreal Children’s Hospital, 1001 Décarie Boulevard, , Room B 04.2915Genral In, Montreal, Quebec, H4A 3J1

The mission of the World Society for Pediatric and Congenital Heart Surgery (WSPCHS is to advance the field of pediatric and congenital heart surgery through innovation, collaboration, and excellence.

The Montreal Children’s Hospital, 1001 Décarie Boulevard,, Room B 04.2915, Montreal H14A 311, QC, Canada, QC H4A 3J1

Wright Insurance Planning, LLC is a professional and independent private insurance firm.

St. Louis, MO

If your out-of-pocket costs for XARELTO® go up because of a Medicare coverage gap in your insurance, you may qualify for XARELTO withMe Coverage Gap Support.

The Patient and Family Connections Meeting at Ahmanson/UCLA ACHD Center provides the opportunity to meet with other ACHD patients and family members who are dealing with similar issues and diagnosis.

100 UCLA Medical Plaza, Los Angeles, CA, 90095

Founded in 1984, Allsup was the first nationwide, private Social Security disability claims services company.

300 Allsup Pl, Belleville, IL, 62223

Angel Flight East (AFE) is a nonprofit organization dedicated to serving the community by facilitating free air transportation for children and adults with medical conditions who need to get to treatment far from home. AFE serves the Northeastern region of the United States, and for destinations beyond our reach, we link with other volunteer pilot organizations. Anyone who requests a flight must be medically stable, able to board an aircraft, and fly in a small non-pressurized aircraft.

1501 Narcissa Road, Blue Bell, PA, 19422

Angel Flight offers free air transportation for any legitimate, charitable, medically-related need, such as travelling for ACHD surgery and/or specialty care.

12345 E. Skelly Drive, Tulsa, OK, 74128

Angel Flight West (AFW) is a nonprofit, volunteer-driven organization that arranges free, non-emergency air transportation within .the 12 Western states for children and adults with serious medical conditions and other compelling needs

3161 Donald Douglas Loop South, Santa Monica, CA, 90405

Angel Flight NE is a 501 (c) (3) non-profit, tax-exempt organization arranging free air and ground medical transportation for patients with limited financial resources who require frequent trips to life-saving medical care. The organization is solely supported by donations from individuals, foundations, and corporate sponsors.

LWM Airport, 492 Sutton Street, North Andover, MA, 08145

Do you or a family member have an upcoming procedure or is there surgery you’ve been putting off?

111 Dallas Street, San Antonio, TX, 78205

Camp Pump It Up is a weekend camp for current patients 8-12 years old, seen at Texas Children’s Hospital in the heart center.

6621 Fannin Street, Houston, TX, 77030

Camp Strong Heart is a two-day overnight summer camp for children and adolescents between the ages of five to seventeen who have been diagnosed with cardiac related diagnoses and are treated at Georgia Regents Medical Center’s Children's Hospital of Georgia’s pediatric heart services.

Camp Twin Lakes, Rutledge, GA, 30663

The CHD Coalition awards scholarships annually to eligible graduating high school seniors.

45 Carey Avenue, Suite 250 #1, Butler, NJ, 07405

The Children’s Heart Foundation Nevada is a nonprofit that offers two $3,000 scholarships for high school seniors about to enter a four-year college or a trade school.

3131 La Canada Street; Ste 110, Las Vegas, NV, 89169

Community Living, Inc. is committed to excellence and compassion in providing innovative services and opportunities for people with disabilities.

1040 St. Peters Howell Road, St. Peters , MO, 63376

The Congenital Heart Alliance of Cincinnati (CHAoC) is a nonprofit, philanthropic foundation, made up of a dedicated group of volunteers, most of whom have been affected personally by CHDs.

4010 Executive Park Drive, Suite 100, Cinncinati, OH, 45241

The Congenital Heart Alliance of Cincinnati (CHAoC) provides support and education to the ACHD/CHD community.

4010 Executive Park Drive, Suite 100, Cincinnati, OH, 45241

The DDRB is a leader, ensuring that individuals with developmental disabilities living in St. Charles County, MO, have quality opportunities and choices to be fully included in society

1025 Country Club Rd., St. Charles, MO, 63303

Disability Rights Legal Center (DRLC) is a 501C-3 non-profit, public interest advocacy organization in California that champions the civil rights of people with disabilities as well as those affected by cancer.

1001 Wilshire Blvd. , Ste 100 #3201, Los Angeles, CA, 90017

The Entertainment Community Fund offers a broad spectrum of programs, a calendar of workshops, support groups, online resources and emergency financial assistance to support the unique, essential needs of all who work in performing arts and entertainment.

8 South Michigan Avenue, Suite 2700, Chicago, IL, 60603

The Entertainment Community Fund offers a broad spectrum of programs, a calendar of workshops, support groups, online resources and emergency financial assistance to support the unique, essential needs of all who work in performing arts and entertainment.

5757 Wilshire Boulevard, Suite 400, Los Angeles, CA, 90036

The Entertainment Community Fund offers a broad spectrum of programs, a calendar of workshops, support groups, online resources and emergency financial assistance to support the unique, essential needs of all who work in performing arts and entertainment.

729 Seventh Avenue, 10th floor, New York, NY, 10019

Ascension Providence understands that not all patients have insurance or the same financial circumstances.

6901 Medical Pkwy, Waco, TX, 76712

Ascension is committed to caring for all people regardless of their ability to pay, with special attention to those who are poor and vulnerable.

1201 West 38th Street, Austin, TX, 78705

Prosper Centers’ mission is to provide expertise, support, and resources that expand access and opportunities for all to thrive.

3000 S IH 35, Ste 300, Austin, TX, 78704

Harboring Hearts is a tax-exempt © (3) nonprofit organization that provides emergency housing, transportation, food and emotional support programming to cardiac surgery and transplant patients and their families in New York City, NY.

PO Box 2674, New York, NY, 10163

The Heart of Gold Charity sponsors a yearly medical and/or nursing scholarship award to highly qualified high school seniors who have congenital heart defects.

PO Box 116, Twin Lakes, WI, 53181

Heart to Hartman’s mission is to empower the adult congenital heart community to take ownership of their health.

The mission of Heartfelt Help Foundation (HHF) is to help financially challenged transplant patients in Northern California pay medically-required, transplant-related expenses which are not covered by insurance.

The Todd and Karen Wanek Family Program for HLHS at Mayo Clinic created the HLHS Consortium and HeartWorks to improve access to clinical trials and allow researchers to pool scientific knowledge with top cardiovascular programs around the country.

Rochester , MN

Hope with Heart Camp is a non-profit organization for children ages 7-17 years old where they can experience a free, week-long summer camp with kids just like them.

PO Box 354, Waldick, NJ, 07463

Intermountain Healthcare is a team of nearly 60,000 caregivers who serve the healthcare needs of people across the Intermountain West, primarily in Utah, Idaho, Nevada, Colorado, Montana, Wyoming, and Kansas.

Corporate Office, 36 S State Street, Salt Lake City, UT, 84111

Intermountain Healthcare is a team of nearly 60,000 caregivers who serve the healthcare needs, including behavioral health, of people across the Intermountain West, primarily in Utah, Idaho, Nevada, Colorado, Montana, Wyoming, and Kansas.

Corporate Office, 36 S State Street, Salt Lake City, UT, 84111

It’s My Heart New England (INHNE) CHD Awareness Scholarship is awarded by It’s My Heart New England, which is a non-profit that provides non-medical support, education and advocacy for those living with congenital heart defects in New England and surrounding areas.

PO Box 111, Danvers, MA, 01923

Legal Aid in California provides free legal services for workers in California.

180 Montgomery Street, Suite 600, San Francisco, CA, 94104

PhRMA’s Medicine Assistance Tool (MAT) is a search engine designed to help patients, caregivers and health care providers learn more about the resources available through the various biopharmaceutical industry programs.

In accordance with their mission and values, Midland Health is committed to caring for all people regardless of their ability to pay.

4214 Andrews Hwy, Suite 210, Midland, TX, 79703

Looking for a career that can change lives while changing yours?

205 Jefferson St., Jefferson City, MO, 65102-0480

Patient Airlift Services (PALS) is a nonprofit organization that arranges free airline services based on need for patients needing medical care and for other humanitarian services.

7110 Republic Airport, 2nd Floor, Farmingdale, NY, 11735

The Patrick Schoonover HeartFoundation was started in 2016 in memory of Patrick Schoonover who collapsed and passed away while playing ice hockey in 2016 due to undiagnosed heart defects.

1060 County Road E, West, Shoreview, MN, 55126

The Paul and Kristina Cardall Family Scholarship was established at SLCC to help students or children of students who live in Utah and are affected by CHD and/or other congenital anomalies such as spina bifida, Down’s Syndrome, cystic fibrosis, fetal alcohol syndrome or those who have had a transplant to obtain an education at SLCC.

Salt Lake City Community College , 4600 Redwood Rd., Salt Lake City, UT, 84123

PLB was created in 1979 and is a taxing entity commonly known as a “Senate Bill 40 Board,” that enters into funding contracts with agencies that serve individuals with developmental disabilities in St. Louis County.

121 Hunter Avenue, Suite 200, St. Louis, MO, 63124

PACE is a community of young adults between 18 and 25 with congenital heart disease.

11615 Hesby Street, North Hollywood, CA, 91601

The Psychology Today website provides information about topics in psychology and offers a mental health practitioner locator.

115 E. 23rd St., 9th Floor, New York, NY, 10010

Transitional Care is the process of providing adolescents as young as 14 years old with the resources and information to find an adult healthcare provider that meets their needs.

3020 Children's Way, San Diego, CA, 92123

As an integral part of the Triplefin group of companies, RxHope is a highly professional team of caring and concerned people dedicated to making the patient assistance process as easy and comfortable as possible for the patient, the healthcare provider and the pharmaceutical company

Methodist Healthcare is committed to providing useful information to their patients so they can understand the financial side of their healthcare needs.

San Antonio, TX

Second Chance Hero is a nonprofit that works with congenital patients by helping them navigate the heart transplant journey.

Nashville, TN

The Social Security Administration provides financial protection for our nation’s people, supporting Americans throughout all of life’s journeys.

Office of Public Inquiries and Communications Support , 1100 West High Rise , 6401 Security Blvd., Baltimore, MD, 21235

The work of the Department of Vocational Rehabilitation (VR) is to support adults of all ages with their employment aspirations.

205 Jefferson Ave, Jefferson City, MO, 65102-0480

One of the most significant transitions in life for students with disabilities is moving from high school into the adult world.

12110 Clayton Road, Town & Country, MO, 63131

St. David’s Health offers financial relief through accessible charity and uninsured discount policies for those in need of financial assistance.

901 W Ben White Blvd., Austin, TX, 78704

If you are facing financial hardship, Stanford encourages you to apply to Medi-Cal or explore other government programs that may be of assistance.

2465 Faber Place, Attn: Patient Financial Assistance, Palo Alto, CA, 94303

Texas Children’s Cardiology Transition Medicine Program makes it easy for a child to move from pediatric to adult congenital heart disease care.

6621 Fannin Street, Houston, TX, 77030

The Chronic Care Management (CCM) program focuses on keeping you healthier at home between your regular doctor appointments.

12221 N MoPac Expy, Austin, TX, 78758

The Caring Place is a community-based, community-supported, and community-serving organization located in Georgetown, Texas.

2000 Railroad Avenue, TX, 78626

The Commonwealth Fund, established in 1918, is a foundation dedicated to affordable, quality health care for everyone.

1 East 75th Street, New York, NY, 10021

The Health Navigator Foundation was founded in 2018 with the aim of supporting patients facing complex life-saving surgeries for organ failure.

2100 Webster Street #100, San Francisco, CA, 94115

“The Riley” is a scholarship awarded to high school seniors who exemplify dedication to Scratch Golf and First Tee.

PO Box 8141, Cincinnati, OH, 45208

This straightforward modern hotel, conveniently situated to provide accommodation for Ronald Reagan UCLA Medical Center patients and their families.

900 Tiverton Ave, Los Angeles, CA, 90095

Patients without health care coverage, UMC will assist patients in determining if they are eligible for financial medical assistance through federal, state, county, or local programs.

602 Indiana Avenue, Lubbock, TX, 79415

University Health cares for patients regardless of their ability to pay.

University Health Financial Assistance, University Health Mail Stop 53-1, 4502 Medical Drive, San Antonio, TX, 78229

The mission of the El Paso County Hospital District, dba University Medical Center of El Paso and University Medical Center Outpatient Clinics is to heal, to serve and to educate. UMC administers high-quality, affordable health care services accessible to all, regardless of one’s ability to pay. An uninsured or underinsured person may be provided charity care based on the Federal Income Poverty Guidelines issued by the U.S. Department of Health and Human Services as published annually in the Federal Register.

University Medical Center of El Paso, 4815 Alameda Ave, El Paso, TX, 79905